{"id":92,"date":"2018-12-05T13:18:08","date_gmt":"2018-12-05T13:18:08","guid":{"rendered":"http:\/\/soins.reseau-amylose.org\/?page_id=92"},"modified":"2025-02-06T19:02:51","modified_gmt":"2025-02-06T18:02:51","slug":"du-reseau-amylose-mondor-au-centre-de-reference-national-des-amyloses-cardiaques","status":"publish","type":"page","link":"https:\/\/reseau-amylose.org\/soins\/espace-reseau-amylose\/du-reseau-amylose-mondor-au-centre-de-reference-national-des-amyloses-cardiaques\/","title":{"rendered":"Du R\u00e9seau Amylose Mondor au Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques"},"content":{"rendered":"\t\t
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Du R\u00e9seau Amylose Mondor au Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Qui sommes-nous ? <\/h2><\/h6>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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La prise en charge des amyloses cardiaques a connu une \u00e9volution majeure au fil des ann\u00e9es, port\u00e9e par les avanc\u00e9es scientifiques et l\u2019expertise m\u00e9dicale. \u00ab\u00a0Du R\u00e9seau Amylose Mondor au Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques\u00a0\u00bb<\/strong>, cette page retrace le parcours d\u2019une initiative d\u00e9di\u00e9e \u00e0 l\u2019am\u00e9lioration du diagnostic, du suivi et du traitement de cette pathologie rare. D\u00e9couvrez comment ce r\u00e9seau sp\u00e9cialis\u00e9 s\u2019est structur\u00e9 pour devenir un centre expert, au service des patients et des professionnels de sant\u00e9.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Le R\u00e9seau Amylose Mondor<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le r\u00e9seau amylose mondor du Centre Hospitalier Henri Mondor a \u00e9t\u00e9 cr\u00e9\u00e9 en 2009 par le Pr Thibaud DAMY, cardiologue, sp\u00e9cialiste de l\u2019insuffisance cardiaque et des cardiomyopathies et le Pr Violaine PLANTE BORDENEUVE, neurologue sp\u00e9cialiste des neuropathies amylo\u00efdes familiales. Il s\u2019est tr\u00e8s vite \u00e9largi \u00e0 l\u2019ensemble des sp\u00e9cialit\u00e9s m\u00e9dicales, chirurgicales, biologiques, et imageriques des organes responsables ou touch\u00e9s par l\u2019amylose : sang (h\u00e9matologie), rein (n\u00e9phrologie), foie (h\u00e9patologie),\u2026 En 2010, le Pr Daniel AZOULAY, sp\u00e9cialiste des greffes h\u00e9patiques des amyloses familiales a rejoint notre h\u00f4pital et notre r\u00e9seau.\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Cr\u00e9ation du GRC Amyloid Research Institute<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le r\u00e9seau amylose mondor a \u00e9volu\u00e9 en un Groupe de Recherche Clinique appel\u00e9 Amyloid Research Institute (GRC ARI) qui regroupe toutes les activit\u00e9s de recherche du r\u00e9seau afin de les potentialiser. Le r\u00e9seau amylose mondor a plus d\u2019une centaine de publications de niveau international et participe \u00e0 de nombreux essais internationaux. A la m\u00eame p\u00e9riode, le secteur cardiologique du r\u00e9seau s\u2019est d\u00e9velopp\u00e9 dans une unit\u00e9 sp\u00e9cialis\u00e9e dans la prise en charge de l\u2019insuffisance cardiaque et de l\u2019amylose comportant 28 lits d\u2019hospitalisation. Depuis sa cr\u00e9ation jusqu\u2019au mars 2017, plus de 1260 patients ont \u00e9t\u00e9 adress\u00e9s pour suspicion d\u2019amylose cardiaque. Le r\u00e9seau participe et cr\u00e9e de nombreuses actions de communications pour am\u00e9liorer la connaissance m\u00e9dicale dans le domaine de l\u2019amylose. 5 journ\u00e9es multidisciplinaires de l\u2019amylose ont \u00e9t\u00e9 r\u00e9alis\u00e9es<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Cr\u00e9ation du centre de r\u00e9f\u00e9rence national des Amyloses Cardiaques<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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En 2017, le r\u00e9seau amylose mondor est devenu le Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques au sein la fili\u00e8re Cardiogen. L\u2019int\u00e9r\u00eat de notre r\u00e9seau est d\u2019avoir sur un m\u00eame site l\u2019ensemble des sp\u00e9cialit\u00e9s m\u00e9dicales et chirurgicales concern\u00e9es par les diff\u00e9rentes maladies responsables d\u2019amylose.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tT\u00e9l\u00e9chargez le triptyque - Centre de R\u00e9f\u00e9rence des Amyloses Cardiaques<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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L'implication des param\u00e9dicaux<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Les assistantes m\u00e9dico-administratives<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Carole HENRION et Isabelle VALLAT<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Les infirmiers de coordination<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Steven MAUPOU<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Les psychologues<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Julie POMPOUGNAC<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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<\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Les ARCs<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Mounira KHAROUBI<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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<\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Du R\u00e9seau Amylose Mondor au Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques Qui sommes-nous ? La prise en charge des amyloses cardiaques a connu une \u00e9volution majeure au fil des ann\u00e9es, port\u00e9e par les avanc\u00e9es scientifiques et l\u2019expertise m\u00e9dicale. \u00ab\u00a0Du R\u00e9seau Amylose Mondor au Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques\u00a0\u00bb, cette page retrace le […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":90,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[],"tags":[],"class_list":["post-92","page","type-page","status-publish","hentry"],"yoast_head":"\nDu R\u00e9seau Amylose Mondor au Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques - R\u00e9seau Amylose - r\u00e9seau de soins<\/title>\n<meta name=\"description\" content=\"Le r\u00e9seau amylose mondor - prise en charge au centre hospitalier henri mondor par l'\u00e9quipe du centre de r\u00e9f\u00e9rence des amyloses cardiaques\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/reseau-amylose.org\/soins\/espace-reseau-amylose\/du-reseau-amylose-mondor-au-centre-de-reference-national-des-amyloses-cardiaques\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Du R\u00e9seau Amylose Mondor au Centre de R\u00e9f\u00e9rence National des Amyloses Cardiaques - 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