{"id":7296,"date":"2025-07-21T16:07:06","date_gmt":"2025-07-21T14:07:06","guid":{"rendered":"https:\/\/reseau-amylose.org\/jesuissoignant\/?p=7296"},"modified":"2025-07-21T16:21:03","modified_gmt":"2025-07-21T14:21:03","slug":"le-reseau-grace-labellise-f-crin-un-pas-decisif-pour-la-recherche-sur-lamylose-cardiaque","status":"publish","type":"post","link":"https:\/\/reseau-amylose.org\/jesuissoignant\/le-reseau-grace-labellise-f-crin-un-pas-decisif-pour-la-recherche-sur-lamylose-cardiaque\/","title":{"rendered":"Le r\u00e9seau GRACE labellis\u00e9 F-CRIN : un pas d\u00e9cisif pour la recherche sur l\u2019amylose cardiaque"},"content":{"rendered":"\t\t
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Le r\u00e9seau GRACE labellis\u00e9 F-CRIN : un pas d\u00e9cisif pour la recherche sur l\u2019amylose cardiaque<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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La labellisation du r\u00e9seau GRACE par F-CRIN<\/strong> (French Clinical Research Infrastructure Network) marque une \u00e9tape majeure pour la recherche sur l\u2019amylose cardiaque<\/strong> en France. Ce label d\u2019excellence renforce la structuration nationale autour de cette maladie rare, en soutenant les initiatives innovantes et les collaborations internationales. Focus sur les enjeux, les objectifs et les retomb\u00e9es de cette reconnaissance strat\u00e9gique.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"reseau-Grace-labellis\u00e9-FCRIN-reseau-amylose\"\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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F-CRIN : une infrastructure au service de la recherche clinique sur l\u2019amylose cardiaque<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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F-CRIN<\/strong> est une initiative port\u00e9e par l\u2019Inserm visant \u00e0 promouvoir la recherche clinique de haut niveau. En f\u00e9d\u00e9rant les CHU, les centres d\u2019investigation clinique, les universit\u00e9s et les industriels, F-CRIN<\/strong> soutient des r\u00e9seaux labellis\u00e9s autour de pathologies cibl\u00e9es comme l\u2019amylose cardiaque<\/strong>.<\/p>

Ses objectifs principaux sont :<\/p>

  • Favoriser la r\u00e9alisation d\u2019essais cliniques multicentriques innovants<\/li>
  • Structurer les r\u00e9seaux autour de maladies rares ou complexes<\/li>
  • Accro\u00eetre la visibilit\u00e9 scientifique de la France \u00e0 l\u2019\u00e9chelle europ\u00e9enne<\/li>
  • Renforcer les liens entre recherche acad\u00e9mique et industrielle<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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    Le r\u00e9seau GRACE : moteur national de la recherche sur l\u2019amylose cardiaque<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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    Le r\u00e9seau GRACE<\/strong> (Group for Research on Amyloidosis and Cardiac Excellence), r\u00e9cemment labellis\u00e9 par F-CRIN<\/strong>, r\u00e9unit des experts nationaux pour structurer et dynamiser la recherche sur l\u2019amylose cardiaque<\/strong>. Co-coordonn\u00e9 par les Prs Thibaud DAMY, Erwan DONAL et Olivier LAIREZ, le r\u00e9seau s\u2019appuie sur les centres experts du R\u00e9seau Amylose<\/strong> et le registre HEAR<\/strong>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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    Objectifs strat\u00e9giques de GRACE labellis\u00e9 F-CRIN<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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    La labellisation F-CRIN de GRACE permettra de :<\/p>

    • Structurer durablement la recherche<\/strong> sur l\u2019amylose cardiaque au niveau national<\/li>
    • F\u00e9d\u00e9rer les acteurs cl\u00e9s<\/strong> : cliniciens, chercheurs, industriels, associations de patients<\/li>
    • Valoriser les donn\u00e9es<\/strong> du registre HEAR pour alimenter les \u00e9tudes cliniques<\/li>
    • Participer \u00e0 des projets europ\u00e9ens<\/strong> d\u2019envergure<\/li>
    • Renforcer la formation et l\u2019information<\/strong> des professionnels de sant\u00e9<\/li>
    • Am\u00e9liorer la visibilit\u00e9 internationale<\/strong> de la recherche fran\u00e7aise sur cette pathologie<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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      Les apports concrets du label F-CRIN pour la recherche sur l\u2019amylose cardiaque<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      Le soutien de F-CRIN<\/strong> permet au r\u00e9seau GRACE de b\u00e9n\u00e9ficier de :<\/p>

      • Ressources logistiques et organisationnelles renforc\u00e9es<\/li>
      • Acc\u00e8s facilit\u00e9 aux appels \u00e0 projets europ\u00e9ens<\/li>
      • Meilleure reconnaissance institutionnelle nationale et internationale<\/li>
      • Meilleure attractivit\u00e9 pour les partenaires industriels<\/li>
      • Un cadre structurant pour d\u00e9velopper des essais cliniques de qualit\u00e9<\/strong><\/li>
      • Une dynamique collective au service de l\u2019innovation th\u00e9rapeutique<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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        Avec la labellisation F-CRIN<\/strong>, le r\u00e9seau GRACE<\/strong> devient un acteur cl\u00e9 de la recherche sur l\u2019amylose cardiaque<\/strong> en France. Cette reconnaissance confirme la pertinence de la dynamique collective port\u00e9e par les professionnels engag\u00e9s dans la lutte contre cette pathologie complexe. C\u2019est aussi un signal fort pour les patients, les institutions et les partenaires, t\u00e9moignant d\u2019une ambition partag\u00e9e : am\u00e9liorer les soins, acc\u00e9l\u00e9rer l\u2019innovation et faire rayonner la recherche fran\u00e7aise au plus haut niveau.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

        Le r\u00e9seau GRACE labellis\u00e9 F-CRIN : un pas d\u00e9cisif pour la recherche sur l\u2019amylose cardiaque La labellisation du r\u00e9seau GRACE par F-CRIN (French Clinical Research Infrastructure Network) marque une \u00e9tape majeure pour la recherche sur l\u2019amylose cardiaque en France. Ce label d\u2019excellence renforce la structuration nationale autour de cette maladie rare, en soutenant les initiatives […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-7296","post","type-post","status-publish","format-standard","hentry","category-non-classe"],"yoast_head":"\nLe r\u00e9seau GRACE labellis\u00e9 F-CRIN - amylose cardiaque<\/title>\n<meta name=\"description\" content=\"Le r\u00e9seau GRACE, labellis\u00e9 par F-CRIN, structure la recherche sur l\u2019amylose cardiaque en France et renforce son rayonnement europ\u00e9en.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/reseau-amylose.org\/jesuissoignant\/le-reseau-grace-labellise-f-crin-un-pas-decisif-pour-la-recherche-sur-lamylose-cardiaque\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le r\u00e9seau GRACE labellis\u00e9 F-CRIN - 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