{"id":1530,"date":"2019-06-05T09:35:33","date_gmt":"2019-06-05T07:35:33","guid":{"rendered":"http:\/\/reseau-amylose.org\/patient\/detecting-hereditary-ttr-amyloidosis-genetic-counselling\/genetic-counselling-procedure"},"modified":"2019-06-05T09:35:33","modified_gmt":"2019-06-05T07:35:33","slug":"genetic-counselling-procedure","status":"publish","type":"page","link":"http:\/\/reseau-amylose.org\/jesuispatient\/detecting-hereditary-ttr-amyloidosis-genetic-counselling\/genetic-counselling-procedure\/","title":{"rendered":"Genetic counselling procedure"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"1530\" class=\"elementor elementor-1530 elementor-bc-flex-widget\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2f59e864 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2f59e864\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-59fcf3a1\" data-id=\"59fcf3a1\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e87ce9b elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"e87ce9b\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6549d414 elementor-widget elementor-widget-heading\" data-id=\"6549d414\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h6 class=\"elementor-heading-title elementor-size-default\"><h2 class=\"elementor-heading-title elementor-size-large elementor-inline-editing pen\" data-elementor-setting-key=\"title\" data-pen-placeholder=\"\u00c9crivez ici...\">Conseil g\u00e9n\u00e9tique<\/h2><\/h6>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2206b40 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2206b40\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5da1a2e\" data-id=\"5da1a2e\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-51a96a7 elementor-widget elementor-widget-text-editor\" data-id=\"51a96a7\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h6>Genetic counselling can involve several different steps and appointments. This is the regulatory protocol practised in all genetic centres.<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2b74093 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2b74093\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-77cc7b0\" data-id=\"77cc7b0\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-93ded73 elementor-widget elementor-widget-text-editor\" data-id=\"93ded73\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h6><span style=\"color: #31b2e0;\"><strong>The different steps: <\/strong><\/span><\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1887861 elementor-widget elementor-widget-image\" data-id=\"1887861\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"http:\/\/reseau-amylose.org\/patient\/wp-content\/uploads\/2019\/01\/csg.jpg\" data-elementor-open-lightbox=\"yes\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6OTU2LCJ1cmwiOmZhbHNlfQ%3D%3D\">\n\t\t\t\t\t\t\t<img decoding=\"async\" src=\"http:\/\/reseau-amylose.org\/patient\/wp-content\/uploads\/2019\/01\/csg.jpg\" title=\"\" alt=\"\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-188dbd0\" data-id=\"188dbd0\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5d5d07e elementor-widget elementor-widget-text-editor\" data-id=\"5d5d07e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h6><span style=\"color: #31b2e0;\"><strong>In detail: <\/strong><\/span><\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5b7a63c elementor-widget elementor-widget-text-editor\" data-id=\"5b7a63c\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h6>1<sup>st<\/sup> step: The medical team (doctor, genetic counsellor and psychologist) explains the illness, the test methodology and the consequences of this test for the patient and their family so that everything is as clear as possible. Patients and family can then ask as many questions as needed.<\/h6>\n<h6>2<sup>nd<\/sup> step: Once the team has provided the necessary information, the patient must make a decision. They are given time to think this over. Only the patient can decide whether they will benefit from this test or not. They will also need to provide written confirmation that they have received all the necessary information to make this decision. The test will consist of a blood test. DNA will be extracted from the blood sample and analysed by the genetic laboratory to locate the familial mutation which causes amyloidosis.<\/h6>\n<h6>3<sup>rd<\/sup> step: The analysis may take several weeks. The results will be sent to the doctor that has prescribed the test and, if requested, to the assigned doctor at Henri Mondor Hospital. This doctor will go over the results in a consultation with the patient. It is the patient\u2019s right to decide whether they wish to acknowledge this result.<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-c877907 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"c877907\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-45379188\" data-id=\"45379188\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-26773f9 elementor-widget elementor-widget-heading\" data-id=\"26773f9\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h6 class=\"elementor-heading-title elementor-size-default\">Regulation\/Lawful Aspects<\/h6>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-abbb4f1 elementor-widget elementor-widget-text-editor\" data-id=\"abbb4f1\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h6>A genetic test for an asymptomatic patient must be prescribed during an individual consultation by a doctor working in a multidisciplinary team that deals with asymptomatic patients. Both the multidisciplinary team and the care protocol are declared by the Biomedical Agency.<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-19a0ac21 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"19a0ac21\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-61598b6d\" data-id=\"61598b6d\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-56ca5a8d elementor-widget elementor-widget-spacer\" data-id=\"56ca5a8d\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Conseil g\u00e9n\u00e9tique Genetic counselling can involve several different steps and appointments. This is the regulatory protocol practised in all genetic centres. The different steps: In detail: 1st step: The medical team (doctor, genetic counsellor and psychologist) explains the illness, the test methodology and the consequences of this test for the patient and their family so [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":1518,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"categories":[],"tags":[],"class_list":["post-1530","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Genetic counselling procedure - R\u00e9seau Amylose Site Patient<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/reseau-amylose.org\/jesuispatient\/detecting-hereditary-ttr-amyloidosis-genetic-counselling\/genetic-counselling-procedure\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Genetic counselling procedure - R\u00e9seau Amylose Site Patient\" \/>\n<meta property=\"og:description\" content=\"Conseil g\u00e9n\u00e9tique Genetic counselling can involve several different steps and appointments. 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